HIV Care for the Golden Years

As people with HIV live longer, thanks to better treatments, they face new challenges. Many are over 50 and dealing with multiple health issues, frailty, and memory problems. They often rely on loved ones, friends, or community members for help. But these caregivers are usually not recognized or supported by healthcare policies.

Researchers are working on a new approach to care that puts the needs of older adults with HIV and their caregivers first. They want to create a model that is fair and considers the diverse experiences of this group. The goal is to make it easier for them to get the care and support they need.

The study will talk to about 45 people, including older adults with HIV, their caregivers, and healthcare professionals. It will explore their experiences with caregiving and identify what works and what doesn't. Then, about 45 people will come together for workshops to design a new care model. Finally, 30 people will discuss how to put the new model into practice.

This project is important because it will help create a care model that is tailored to the needs of older adults with HIV and their caregivers. It will also provide a framework for designing inclusive care models for other chronic or stigmatized conditions. The study is expected to be completed by mid-2028, with the findings informing policy, program planning, and service delivery.

The researchers are taking a unique approach by involving the people who will be using the care model in its design. This will ensure that the model is grounded in lived experience and meets the needs of the community. By prioritizing equity and inclusivity, the study aims to make a positive impact on the lives of older adults with HIV and their caregivers.