The Unseen Struggle of Men Caring for Loved Ones with Dementia

In India, millions of people live with dementia, and family members often take on the role of caregivers. But what about the men in these families, especially those from lower socioeconomic backgrounds? They are often overlooked in research and policy, despite bearing a huge burden.

A recent study looked at the experiences of 10 male caregivers from economically disadvantaged families in India. These men were not only caring for their loved ones 24/7 but also working as the sole income providers for their households. This double responsibility led to significant stress, debt, and disruption of their daily lives.

The cultural expectation of seva, or moral and filial responsibility towards parents, played a complex role in their lives. On one hand, it gave them a sense of purpose and moral meaning. On the other hand, it trapped them in a role that was neither recognized nor supported by society.

The study found that these men struggled with emotional processing due to traditional masculine norms and the need to survive in a tough economic environment. This research highlights the need for a broader understanding of caregiver burden, one that takes into account socioeconomic inequality and cultural context. By recognizing the challenges faced by men in these situations, policymakers can develop more effective and culturally adapted education and caregiving policies.